Would Love Your Review


I working on the publication of the second book in the Sinny-Sized Series. It’s called Dozer and the Horse Ride!!

I’m hoping Barnes & Noble will pre-order some, so I’d love to be able to show them some reviews of Sienna’s Locket. I’d certainly appreciate it if you logged into Barnes & Noble and left a review on there.  Thank you!!

http://www.barnesandnoble.com/​s/sienna-s-locket

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Questions


I recently asked readers what questions they might have. Here are two great questions:

1. What advice would you give on how curb their (children) curiosity without coming off as being rude or disrespectful?

For the most part, we can tell when people are asking out of curiosity and have no disdain in their hearts. When people have come up to us with their “hat in hand” and asked if they could ask a question, it is much better received.

Kids are always going to be curious. It’s how they learn. It’s the parents’ job to teach them how to handle that curiosity. It sounds like you guys are doing well. 🙂 Children’s curiosity is one reason why I wrote Sienna’s Locket. I feel that it is our duty as humans to use the experiences we’ve been through to help others. The idea behind the series is to help children see that we are all different and that it’s a very good thing. We are all “beautifully and wonderfully made.” So, to answer your question about how to help quench children’s curiosity, I would suggest you help them look at that person’s difference and see how it could be a benefit to them. This will also help them as they age and they begin to see what they perceive as their own faults. Hope this helps! 🙂

2. What is the most worrisome part for you about Sienna’s disorder?

We look at the medical differences that Sienna has, we look at them more like challenges rather than disorders. We do, however, are most concerned with the unknown. We don’t focus on it, but we’re not denying it either. There is little information on Sienna’s Dandy Walker or her Primordial Dwarfism. So, we try to participate in medical discoveries when possible. We plan for both possible futures that Sienna may have. We tell her to shoot for the moon and focus on helping her reach her potential–whatever that may be.

Camp Blessing


 

Sienna spent her first week at an overnight camp this week.

I was a little nervous.  She was excited.  The camp is a camp for special children and one of her good friends was going to be there.

We packed up her suitcase.  I, being the somewhat retentive person I am, packed her clothes in separate Ziploc bags and labeled them by day.

As we drove to the camp, Sienna couldn’t stop smiling and talking about the things she thought they might do.

Sienna squeeled as we pulled up to the gate of the campgrounds.  We checked her in at the main house and they took us to her cabin.

It was a very cute cabin that she would be sharing with 11 other girls.  We got her bed ready and headed to tell Sienna goodbye.  (Sienna had already seen her friend and had taken off to be with her.)

I felt very confident.  Each camper was assigned their own counselor.

All week I was sure that I would get a call.  Nope. No call.  Sienna was apparently doing fine at camp. 

The house was very quiet compared to when she’s home.  It was weird to not have her incessant signing around the house. 🙂

Finally the day came to pick her up from camp.  Sierra and I drove to the camp and found a seat in the house where they would give out camper awards and show a video of the week’s activities.

Looking around, you could see that the counselors genuinely loved being with these children.  Their eyes sparkled just as brightly as the eyes of the special children around them.

They gave out awards to each camper and gave a brief, but touching description of why they were given a particular award.  Each camper was excited to hear their name being called.  There was joy in the room and you couldn’t help but notice that every camper was happy–no matter what special need they had.

Sienna received the Most Confident award. I chuckled.  That award isn’t too much of a surprise. Haha

I got to see the video of the activities they did.  They swam, fished, did archery, rock climbing, horseback riding…They even did a Zip Line. 

Being surrounded by all those special campers with such enormous hearts and joyous spirits was an experience that everyone should be able to experience.  It reinforces that life is what you make of it, not what it’s made of you.

Scottish Rite


The wonderful nurses from the Genetic Department at The Scottish Rite Hospital in Dallas drove all the way to us today to get our blood samples for their DNA tests.  I’m so excited about the work they’re doing.  It’s so neat to think that we could be possibly playing a part in scientific discovery.

Sienna was up first.  She sat down, a bit nervous.  One of the nurses talked to about one of her favorite subjects–Justin Bieber–while the other one took the sample.  Before she knew it; it was done.  She looked up and said, “Oh, you’re done?”  She didn’t even notice.  As promised, I got her a cookie and her beloved chocolate almond milk.  She actually only ate about half of the cookie because she saw the pear I was eating and wanted some of it instead.  Smart kid. 🙂

Then it was Sierra’s turn.  Not having had as much experience being prodded and poked like Sienna has had, Sierra was pretty nervous.  She had seen just how much blood was taken from Sienna.

She sat down on the chair and tried to remain calm.  They nurses did just like they did with Sienna.  One tried to distract, while the other drew the blood.  Just as she got the needle in, Sierra’s eyes rolled to the back of her head.  She was out.

It had been a long time since I had seen her pass out and Sienna had never seen it.  Sienna sat there stunned.  She got worried once Sierra started convulsing.

After a brief time, Sierra was coming back to.  She stared at me, gave a crooked smile and said, “What happened? Are we done?”

“No, baby.” I said, with a little light heartedness in my voice. 

We let her lie down for a while and had her eat some cookies.  We put a cool towel on her neck and head.  After about 40 minutes, she felt better.

The second attempt was done while she was still lying on the sofa.  One of the nurses prayed with Sierra.  Very cool.

I asked her question after question trying to distract her.  My thought process was that if she was talking to me, she wasn’t holding her breath.

It worked!  They were able to successfully collect the samples they needed!

“Oh, that wasn’t bad,” Sierra said.  Sheesh!  LOL

Always Making Us Laugh


Sienna always has a great way of looking at things and she always makes us laugh.

Today I let her know that next week we were going to have some blood drawn as part of the DNA study that the Scottish Rite Hospital was doing.  (They’re trying to identify the gene mutation and hopefully be able to put a name to the type of Primordial Dwarfism she has.)

So here’s how the conversation went after I told the girls:

     Sierra: What?  Is that going to hurt?  How much blood are they going to take?

     Me: Just a little.  It’s very little blood.

     Sierra: Will I get my blood back?

     Me: Yes, your body can recoup the blood loss and you’ll be fine.  You’ll have a cookie right after and you’ll be fine.

     Sienna: Cookie?  Cool.  I’ll do it if I get a cookie.

LOL.  She’s such a nut.  We love her humor!

Questions?


When we venture out to just about any public place, we get starred at.   We’ve all gotten used to it. 

Sometimes people stare because they’re “freaked out.” (A little girl once walked up to Sienna and told her that she freaked her out.  Sad.)  However, most often, I think people stare because they’re curious. 

Occassionaly, people will come up to us and start talking.  They want to curb their curiousity.  They’re usually full of questions and we don’t mind answering those questions. 

What questions would you like answered? 🙂

Little People Conference


This time last year was our first time to attend the Little People Conference. We spent our 4th in Nashville watching a wonderful downtown fireworks display. Sienna was a bit overwhelmed by the conference, but loved seeing everyone. She said it made her feel tall. It was a great experience for the rest of the family, too. We were able to visit with many families who shared their tips, suggestions and stories. It was a wonderful experience. We are sad that we weren’t able to make it there this year, but we look forward to going next year when the conference is in Dallas.