It’s Baaaaaaaaaaaaack!


It’s Baaaaaaaaack!  School, that is.

Sienna’s pretty excited about school this year.  She’s going to be an 8th grader…” Top of the Totem Poll”…Top of the proverbial junior high food chain.

She wasn’t too pleased with the school clothes shopping.  I wasn’t either. 😦  This is the first year that our bags weren’t filled with matching and coordinating outfits.  I love seeing them in matching outfits.

At 5’4″, Sierra is easily in the Junior’s clothes, but unfortunately, Sienna hasn’t really grown much in a while.  She’s gained a bit of weight, so that’s nice, but she still has the waist of a 2-year-old.

The doctor said she was most likely done growing now, so we’re really focusing on forcing her to do as much on her own as possible.

We don’t really have to buy any new jeans or shoes.  We found a few basic tops that we can accessorize with some necklaces and cute earrings.  She really wanted some bangle bracelets like Sierra was getting and cute belts, but they were all too big.  So, I’m going to call on my jewelry making friends and scour the internet to see what I can find for her. 🙂  Too bad I didn’t take Home Ec. in school. Haha

We did find a fedora, though.  She can’t wear it to school, but it was just too sassy for me to pass up! (Size 12 months, btw hee hee)

Next up is hair cuts and a few more school supplies!

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Little People Conference 2012


We were blessed enough to have the Little People Conference in our state this year.  So, it wasn’t too expensive for us to attend.

It was a wonderful week. Sienna made new friends and was delighted each time someone recognized her from the media coverage.  She was on Cloud 9.

We learned so much about the advances in the genetic testing that’s currently being done.  In just a short while, the geneticists have discovered another mutation that allowed them to identify another form of Primordial Dwarfism.  That is so exciting!

Sienna’s particular form of Primordial Dwarfism is still unidentified, but this discovery means we’re on the right path.

Many have asked me why this is a big deal.  Why does it matter if they identify a particular type of Dwarfism?  Each form of Dwarfism has its own medical concerns.  So, identifying someone’s particular variant of Dwarfism affords them the ability to seek the appropriate medical testing and take appropriate cautionary measures if needed.

When we returned home, Sienna almost immediately started bickering with her sister.  It took me an entire week to figure out why.

She had been in a “safe zone”; in a bubble per se.

At the conference, Sienna was able to feel judgement-free.  She was no longer the shortest in the room.  She wasn’t treated like a baby.  She wasn’t the only one.

When she came home; she was back in the real world.  Back to staring at people’s backsides.  Back to heavy doors and restaurants automatically offering her a kid’s menu.

So, we’ve gotten her to talk through her frustrations a bit better and have forced her to be even more independent than she already was.

She’s a resilient kid and astounds me with her joyous attitude always!