We were blessed enough to have the Little People Conference in our state this year. So, it wasn’t too expensive for us to attend.
It was a wonderful week. Sienna made new friends and was delighted each time someone recognized her from the media coverage. She was on Cloud 9.
We learned so much about the advances in the genetic testing that’s currently being done. In just a short while, the geneticists have discovered another mutation that allowed them to identify another form of Primordial Dwarfism. That is so exciting!
Sienna’s particular form of Primordial Dwarfism is still unidentified, but this discovery means we’re on the right path.
Many have asked me why this is a big deal. Why does it matter if they identify a particular type of Dwarfism? Each form of Dwarfism has its own medical concerns. So, identifying someone’s particular variant of Dwarfism affords them the ability to seek the appropriate medical testing and take appropriate cautionary measures if needed.
When we returned home, Sienna almost immediately started bickering with her sister. It took me an entire week to figure out why.
She had been in a “safe zone”; in a bubble per se.
At the conference, Sienna was able to feel judgement-free. She was no longer the shortest in the room. She wasn’t treated like a baby. She wasn’t the only one.
When she came home; she was back in the real world. Back to staring at people’s backsides. Back to heavy doors and restaurants automatically offering her a kid’s menu.
So, we’ve gotten her to talk through her frustrations a bit better and have forced her to be even more independent than she already was.
She’s a resilient kid and astounds me with her joyous attitude always!