Your Path Always Has a Purpose


As a young girl, I loved to write and was apparently good at it.  Writing seemed to just come easily to me.  I would often times—and still do—find myself waking in the middle of the night to record or write down what I had just literally  “written” in my sleep.

When I was growing up, my parents often said I should be an attorney because I was just too good at arguing.  Debate fascinated me.

I was always known for standing up for myself and for things I didn’t agree with.  My teachers didn’t always appreciate my enthusiasm for banter.  I recall a particular Biology teacher, in fact.  I don’t believe I received a good conduct grade in his class. Haha

Entering college with a Business major seemed logical, yet it didn’t move me.  Despite my love for arguing, being an attorney didn’t intrigue me either.  I still yearned for the ability to express my creative side.  I seemed to have an interesting mix of the use of my left and right sides of my brain.  This led me to a BA in Mass Communications/Journalism declaration.

At the time, I thought I was supposed to use that degree towards a position as a TV Anchor.  Not what God had in mind…

I could argue.  I could write.  I was born to stand up and write to right the wrong.

While growing up and working on my skills, I had no idea what my path was preparing me for.  The wrongs I would be fighting against would be wrongs against my own child.

Fast forward a few years and I’m using my debate skills to gather information and stand up for my special-needs daughter.  I’m using my writing abilities to spread the word of what’s going on with her struggles in social settings, school, health…  I’m able to reach out to other parents in similar situations.  I’m able to help people feel like they’re not alone.

God gave me Sienna because I have the ability to write and the ability to fight. Sienna inspires me to speak out for other children.  My heart aches right now thinking about the children who don’t have a voice…I see it too often and these children deserve a fight.  Special children bring so much joy and perspective to life.  They’re incredible human beings—angels on Earth.  I accept it as a blessing to be able to use my tools to speak for them and fight for them.

Do I have all the resources and talents needed to take on the entire world of injustice?  No.  What I do have is the knowledge that my path had a purpose–that I’ve been given talents and it’s my duty to use them for the greater good.  It is my duty to focus on changing just a few lives so that others can focus on doing the same.  I’m honored that God would trust me enough to allow me to be Sienna’s mom and that together we can speak up for those who can’t do so for themselves.

If you’re trying to figure out your purpose in life right now or if you’re discouraged because of all the things you can’t do or tools you don’t have; I encourage you to take a look at what talents you HAVE been given.  Look at what you CAN do.

You have been given a talent of some kind that you can use to take part in changing the world.  Take part in making people happy.  Take part in easing someone’s journey through a difficult time.

Find a way to use what you CAN do to make a difference.  Don’t focus on perfection of the world.  Focus on progress. One person at a time.

Join the Movement: Equal Restroom Access for Little People


Please help in the movement to gain Equal Restroom Access for Little People.  Please sign the petition.

Questions


I recently asked readers what questions they might have. Here are two great questions:

1. What advice would you give on how curb their (children) curiosity without coming off as being rude or disrespectful?

For the most part, we can tell when people are asking out of curiosity and have no disdain in their hearts. When people have come up to us with their “hat in hand” and asked if they could ask a question, it is much better received.

Kids are always going to be curious. It’s how they learn. It’s the parents’ job to teach them how to handle that curiosity. It sounds like you guys are doing well. 🙂 Children’s curiosity is one reason why I wrote Sienna’s Locket. I feel that it is our duty as humans to use the experiences we’ve been through to help others. The idea behind the series is to help children see that we are all different and that it’s a very good thing. We are all “beautifully and wonderfully made.” So, to answer your question about how to help quench children’s curiosity, I would suggest you help them look at that person’s difference and see how it could be a benefit to them. This will also help them as they age and they begin to see what they perceive as their own faults. Hope this helps! 🙂

2. What is the most worrisome part for you about Sienna’s disorder?

We look at the medical differences that Sienna has, we look at them more like challenges rather than disorders. We do, however, are most concerned with the unknown. We don’t focus on it, but we’re not denying it either. There is little information on Sienna’s Dandy Walker or her Primordial Dwarfism. So, we try to participate in medical discoveries when possible. We plan for both possible futures that Sienna may have. We tell her to shoot for the moon and focus on helping her reach her potential–whatever that may be.

Camp Blessing


 

Sienna spent her first week at an overnight camp this week.

I was a little nervous.  She was excited.  The camp is a camp for special children and one of her good friends was going to be there.

We packed up her suitcase.  I, being the somewhat retentive person I am, packed her clothes in separate Ziploc bags and labeled them by day.

As we drove to the camp, Sienna couldn’t stop smiling and talking about the things she thought they might do.

Sienna squeeled as we pulled up to the gate of the campgrounds.  We checked her in at the main house and they took us to her cabin.

It was a very cute cabin that she would be sharing with 11 other girls.  We got her bed ready and headed to tell Sienna goodbye.  (Sienna had already seen her friend and had taken off to be with her.)

I felt very confident.  Each camper was assigned their own counselor.

All week I was sure that I would get a call.  Nope. No call.  Sienna was apparently doing fine at camp. 

The house was very quiet compared to when she’s home.  It was weird to not have her incessant signing around the house. 🙂

Finally the day came to pick her up from camp.  Sierra and I drove to the camp and found a seat in the house where they would give out camper awards and show a video of the week’s activities.

Looking around, you could see that the counselors genuinely loved being with these children.  Their eyes sparkled just as brightly as the eyes of the special children around them.

They gave out awards to each camper and gave a brief, but touching description of why they were given a particular award.  Each camper was excited to hear their name being called.  There was joy in the room and you couldn’t help but notice that every camper was happy–no matter what special need they had.

Sienna received the Most Confident award. I chuckled.  That award isn’t too much of a surprise. Haha

I got to see the video of the activities they did.  They swam, fished, did archery, rock climbing, horseback riding…They even did a Zip Line. 

Being surrounded by all those special campers with such enormous hearts and joyous spirits was an experience that everyone should be able to experience.  It reinforces that life is what you make of it, not what it’s made of you.